First! I am sooooo excited most of my best friends are going to be in Atlanta this weekend for the walk to raise Brain Tumor Awareness! Team Rosa has 80 people signed up! I was chosen as the ambassador and I will be giving a speech after the race. Anyone want to write it for me? Anyway, I can't wait to walk with all my friends and family beside me. AND someone from my team better win! I have I have some athletic friends.
I went to Houston this Wednesday to meet with my doctor there..The appointment didn't go exactly how I thought, and I was shocked to hear they want me to have brain surgery again, a week from today. Whew. This will be a more invasive surgery than the first one I had, and they are going to try and remove as much live tumor as they can. Its full on Grey's Anatomy, they put me to sleep, wake me up, and I will talk to the surgeon during the actually removal part, to hopefully safely remove it without doing any permanent damage to my speech. They are doing this because, even on a high dosage of steroids, the swelling on my brain continues to increase. I'm really nervous, and I will be glad when its over.
I wanted to share another blog with you guys. This guy, Kevin, I think I have blogged about him before. His mother had the same type of brain tumor as me- a GBM. I've never put that on my blog before, FYI. He is doing a trans-American walk to raise awareness for this awful disease. He is not starting the walk till this fall, but here is his blog. You can also follow him @kevinswalk on twitter.
I appreciate if you keep me in your thoughts next week as I go through surgery and recovery. I'll be in Houston at least 10 days. I'll post pictures of the walk ASAP, before Houston! Thats a good promise :)
OH I just found about that tomorrow in the state of Georgia is MARISSA PARKS today!!!!! Hope you guys all celebrate appropriately!!!!!!! Kind of a big of deal.
I went to Houston this Wednesday to meet with my doctor there..The appointment didn't go exactly how I thought, and I was shocked to hear they want me to have brain surgery again, a week from today. Whew. This will be a more invasive surgery than the first one I had, and they are going to try and remove as much live tumor as they can. Its full on Grey's Anatomy, they put me to sleep, wake me up, and I will talk to the surgeon during the actually removal part, to hopefully safely remove it without doing any permanent damage to my speech. They are doing this because, even on a high dosage of steroids, the swelling on my brain continues to increase. I'm really nervous, and I will be glad when its over.
I wanted to share another blog with you guys. This guy, Kevin, I think I have blogged about him before. His mother had the same type of brain tumor as me- a GBM. I've never put that on my blog before, FYI. He is doing a trans-American walk to raise awareness for this awful disease. He is not starting the walk till this fall, but here is his blog. You can also follow him @kevinswalk on twitter.
I appreciate if you keep me in your thoughts next week as I go through surgery and recovery. I'll be in Houston at least 10 days. I'll post pictures of the walk ASAP, before Houston! Thats a good promise :)
OH I just found about that tomorrow in the state of Georgia is MARISSA PARKS today!!!!! Hope you guys all celebrate appropriately!!!!!!! Kind of a big of deal.
Thanks for the shout-out, Marissa! I wish you the best re: your upcoming surgery. You've decided to go with the best cancer center in the country-- possibly the world-- so I know you're in good hands.
ReplyDeleteI have no doubt that you can write an excellent, uplifting speech for the upcoming event. Good luck with that, too, and I hope that someone on your team does, in fact, win!
Hugs,
Kevin
PS: Just FYI: my own walk is very likely to take place early next year instead of this fall. I've had to do a good bit of thinking about that, and the fall timing is all wrong, especially once we start to factor in the weather. The route will probably be the American Discovery Trail, which reaches from the east coast (Delaware) all the way to the west coast (San Francisco). Thanks again for helping me market my effort. You're one of the bravest people I know, and I can say that despite our never having met!
thinking of you and your family
ReplyDeleteHope each day is better
Sandra Harlin